With the proliferation of oral therapies (in place of injectables) for many chronic conditions, the locus of medical treatment is shifting from the surveilled context of the clinic to the private space of the home. In the home, compliance and persistency – the extent to which patients take...
This paper illustrates how the concept of “Human API” can help post-treatment cancer patients with challenges they face once they are released from the hospital. The results and implications of this semester long graduate project will help illuminate how the Human API through its various data...
![The Invisible Work of Being a Patient and Implications for Health Care: “[The Doctor Is] My Business Partner in the Most Important Business in My Life, Staying Alive”](https://www.epicpeople.org/wp-content/uploads/2023/08/sam-T2r9oWS-NDQ-unsplash-scaled-e1693362877450-1080x675.jpg)
In a distributed system of care, patients shuffle among many clinicians and spend the majority of their time away from the treatment center. Although we see the results of patients’ work (e.g., medication taken, arrived at appointment) we do not see the work itself. By failing to see this...